What is Lewy Body Dementia (LBD)?

Lewy body dementia is a type of dementia caused by abnormal protein deposits in the brain, affecting thinking, movement and perception. 

How it may present

People with Lewy Body Dementia (LBD) may experience:

  • Visual hallucinations
  • Fluctuations in attention or alertness
  • Movement changes similar to Parkinson’s (e.g. stiffness or slowed movement)
  • Sleep disturbances and changes in thinking

Why it matters

Symptoms can vary day-to-day, making Lewy Body Dementia (LBD)  complex to live with and to recognise. This unpredictability can be challenging for both the individual and those around them. 

FAQ

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Rare dementias can feel isolating, but support, understanding and community make a difference.

Our goal is to better support people living with rare dementia, carers and the professionals who support them: