What is Frontotemporal Dementia (FTD)?

Frontotemporal dementia (FTD) is a group of conditions that affect the frontal and temporal parts of the brain, areas responsible for behaviour, personality and language. 

How it may present

People with FTD may experience:

  • Changes in personality or behaviour
  • Reduced empathy or social awareness
  • Repetitive or impulsive actions
  • Difficulties with language or communication

Memory may remain relatively intact in the early stages.

Why it matters

Since early symptoms can look like mental health or personality changes, FTD is often misunderstood or diagnosed late. This can affect relationships, employment and self-identity. 

FAQ

Find help

Rare dementias can feel isolating, but support, understanding and community make a difference.

Our goal is to better support people living with rare dementia, carers and the professionals who support them: