What is Familial frontotemporal dementia (fFTD)?

Familial frontotemporal dementia is an inherited form of FTD, caused by genetic changes that run in families. 

How it may present

Symptoms often mirror frontotemporal dementia (FTD), but may:

  • Appear at a younger age
  • Occur across generations
  • Include behaviour, language or decision-making changes

Why it matters

Like other inherited dementias, fFTD raises complex questions about genetics, identity and future planning. 

FAQ

Find help

Rare dementias can feel isolating, but support, understanding and community make a difference.

Our goal is to better support people living with rare dementia, carers and the professionals who support them: