What is Familial Alzheimer’s Disease (FAD)?

Familial Alzheimer’s disease (FAD) is a rare, inherited form of Alzheimer’s disease caused by specific genetic changes passed through families. 

How it may present

FAD often develops earlier in life, sometimes in a person’s 30s, 40s or 50s. It typically begins with:

  • Progressive memory changes
  • Difficulty planning or problem-solving
  • Gradual decline in other forms of thinking

Why it matters

FAD does not just affect individuals, it affects whole families, often across generations. Questions about genetics, future risk, and planning can be deeply challenging. 

FAQ

Find help

Rare dementias can feel isolating, but support, understanding and community make a difference.

Our goal is to better support people living with rare dementia, carers and the professionals who support them: